@laurpottsx: Replying to @cicibaybee Endometriosis of the uterosacral ligaments (USLs) is one of the most frequent sites of deep infiltrating endometriosis (DIE), affecting a large percentage of patients with deep pelvic disease. The uterosacral ligaments are pairs of thick bands of connective tissue that connect the lower back of the uterus to the base of the spine (sacrum) and help support pelvic organs. When endometrial-like tissue implants and grows in these ligaments, it thickens and bleeds during menstrual cycles, leading to localized inflammation, scar tissue, and severe pain Source 🩺 - https://www.isuog.org/clinical-resources/patient-information-series/patient-information-gynecological-conditions/deep-endometriosis-of-the-uterosacral-ligaments.html #uterosacralligament #endometriosis #legpain #endometriosisawareness #dynamicillness

Laura | Women’s Health Creator
Laura | Women’s Health Creator
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Saturday 31 October 2026 20:28:10 GMT
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_celieo
_celieleo :
Mine feels like growing pains, but it starts at the pelvis and moves its way down my legs to my knees. Always corresponds with an endo flare after the leg pain
2026-11-09 15:32:33
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ericuhhh89
Erica :
This sounds exactly like what I think is going on with me! That or my fibroid is pushing on my nerves. My leg pain is so intense! The worst symptom for me, I’ve gone to my gyno, GP, a derm, and going to a GI Dr next week. I’ve started physical therapy too but my legs hurt every day.
2026-11-09 07:10:18
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weekndwitch
weekndwitch :
I had it there too!
2026-11-09 01:22:53
0
broganbatty
Brogan Batty :
I had it there twice but since it’s been removed my leg and scitcia and lower back pain has got much worse ! I think they’ve irritated the sciatic nerve when removing the endo! X
2026-11-01 10:09:11
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itsnotjustaperiod.uk
It’s Not Just A Period :
Oh DIE on uterosacral ligaments is the worst 😩
2026-11-01 20:07:57
13
gogoolivergo
Oliver Finnegan :
Did them removing it make it better?
2026-11-08 03:58:59
0
clairestarrs
Cici :
It’s actually a disgrace how they just won’t listen or put 2 & 2 together. I went to gp in 2018 with severe pelvic pain, results were pcos and fibroids fast forward to 2024!im breaking out in rashes sore legs, severe left hip pain, pushed to rheumatologist to neurology to dermatology every specialist said not my problem, only to find out after a private scan I had endometriosis and endometriomas on my left ovary. Called my gp and he’s like yeah you were diagnosed in 2018 I guess I forgot to mention it! 8 years of my life wasted, in agony searching for answers that they had all along 🤬 they just refused to connect the dots
2026-11-01 09:28:11
19
brittany__p__
Brittany_P :
Toothache in the leg!! You literally just validated me so much that’s the perfect way to describe what I get with my endo
2026-11-05 01:27:38
4
endocrohnshub
Unfiltered -IBD & ENDO :
I’ve just been reading through all these related symptoms you mentioned and I have every single one. I already know I have deep‑infiltrating endometriosis, but I feel like there’s more going on with it too.
2026-11-01 10:13:19
2
sonia.kandhola
soniakandhola :
Same here girl!! The leg pain is no joke. Proud of you!
2026-11-02 03:41:38
2
xx.cbw.xx
Cora Beth❤️‍🔥🖤❤️‍🔥🖤 :
Do we know if there’s any way it can be seen in this area on a MRI using endometriosis protocol? I’m awaiting surgery and my main current complaint is really lower back pain like just right above my bum and it radiates all into my groin and down my legs causing leg pain and bad leg weakness! So far they’ve seen on ultrasound my ovary is fixed in my pouch of Douglas and my uterus is pulled back and fixed stuck in a folded back position and tethered to my pelvis and surrounding areas and I have negative sliding sign so everything is essentially frozen/fixed with signs of adenomyosis also. I’m certain it will be in my uterosacral ligaments and possible nerve involvement too but don’t know where to start with getting them to listen😫
2026-11-01 10:46:49
1
sophielouisecowley
Sophie Louise :
I have this to! Sciatic pain was one of my worst symptoms endo currently on the pill to try keep it at bay, dreading coming off because it got so debilitating 😭
2026-11-02 09:22:11
5
littlebitaboutalot
Jamie :
We KNOW exactly where it is sometimes and I don’t know why it takes so much to be believed
2026-11-06 14:45:11
1
amie_e_xo
Amie_E_XO :
Have you had any relief with the pain post surgery? I have my surgery on Sunday and I’ve always had nerve pain in my leg, never thought it could be endo that caused it until I was diagnosed in June
2026-11-01 09:51:20
2
kirasaesthetics_
K I R A :
Omg me too !!! My doctors told me Thursday I don’t have endometriosis (I’ve had the surgery and had it confirmed) we really do know our bodies!! 💕💕
2026-11-01 17:09:01
2
annih1013
Annih1013 :
Same. Leg pain was my most debilitating symptom. I just had a hystetectomy/stage 4 endo excision. My ovary and rectum were densely adhered to my left uterosacral ligament and a portion of it was removed. 💛
2026-11-01 14:08:21
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rchlsbrndmgn
🥰 :
This is me!! I knew the feeling was 100% that area as they pinned up my ovary the previous surgery and it was such an odd sensation.
2026-11-02 22:14:24
2
mangadose92
Monica 🍁 :
I have it there but it hurts my hips my hips feel bruised my legs hurt but not as bad.
2026-11-05 23:54:24
1
getik79
GetiK79 :
same here!
2026-11-02 21:17:29
1
jodee330
jodee :
they've put its on mine too n I always have leg pains n hip issues now
2026-11-01 21:46:35
4
scorpion33883
Kamelia92 :
I got that after my first ivf :) had operation but then another ivf and hell again same situation:/
2026-11-02 17:12:17
2
mycollapsedlung
Jen | My collapsing lung :
mine was (and is again) very severe in this area and my god my hip is suffering bad! it can be such a deep pain in that area cant it 🫶🏻
2026-10-31 20:54:51
1
headlines87
headlines hair :
I have stage 4 on my left hip down to my knee dose be so sore its getting bad I cant sleep on that side im assuming its that x
2026-11-01 20:05:26
2
mollymoo7575
Molly-moo :
I got Endo on my uterosacral ligament and I got told I have to loose weight before they do the surgery.. they can see it in my MRI [Innocent] they won’t do surgery until my BMI is under 35. I also have to wait 1 -2 years until my follow up appointment from MRI scan 🙃
2026-11-01 21:53:39
2
mafia_mamma1
user3143285498598 :
I presented to my GP saying that I had an issue with my left ovary. I had every investigation under the sun essentially tying to prove it was something else (colonoscopies etc). Diagnostic laparoscopy found deep infiltrating endometriosis all around my left ovary and on my bowel+pelvic side wall….it took 6 years to get the laparoscopy from first presentation. Had they listened, I would have been diagnosed significantly earlier 🙄
2026-11-01 21:00:24
2
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