Daisy | Tilly & her NG ✨
Region: GB
Monday 02 November 2026 19:43:50 GMT
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Amy :
I found when we got a feeding pump is was much easier. she carries it on her back and can do everything
2026-11-03 12:46:13
1
Kinderwunsch nach Fehlgeburten :
Hey :) Thank you so much for sharing the journey ☺️may I ask why she’s still on a ng tube and not a g tube? My baby girl has currently an ng tube since 1.5 months because she can’t drink safely neither. She has a bit of aspiration. We’re scheduled for a g tube soon. The doctors told us that the ng tube is only for short term use
2026-11-02 19:55:01
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Rachel :
Your doing amazing Tilly is beautiful totally agree our Tommy is tube fed too x
2026-11-05 08:11:18
1
camelot :
Hello do you place the Ng tube yourself, I have to do it and I need some guidance please
2026-11-02 21:03:18
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Mrs MM :
may I ask who told you to use the small clips for keeping the tube in her hair ?
2026-11-02 21:22:01
1
Elise Bradfield :
Can she get a g tube?
2026-11-03 00:22:27
1
Kenlyn/mummytoatubie :
When you wake up and the tubes your first thought and your last thought at night and when you have to make sure you have an emergency bag everywhere car, house and even in other family members houses I carry 3 bags not including Ava’s feed bag every day just incase we stay out longer or the tube comes out or we end up in hospital and my other kids need to stay out
2026-11-02 23:02:30
3
Lisa :
yup, my daughter is pump fed every 3hrs but her feed takes 45 minutes & you need to prepare her feed 1hr before. it's just a big conveyor belt of feeding every day.
2026-11-03 10:35:42
2
Alyssa Pennington471 :
Please don’t feel alone we are in a very similar situation and I feel exactly the same most the time … please reach out if you want x
2026-11-05 16:11:46
1
Shakira Peart :
I cried about this today and it really hurt me 😂 xx
2026-11-02 20:02:33
1
Georgia | Oakley’s Journey :
You’re doing amazing! I can totally relate, I’m so glad I met you on this journey. I don’t know how I would get through a day without our voice notes😂😂💖
2026-11-02 20:23:47
2
Charlotte| self employed mum :
Totally relatable! When no one else gets what you have to do day in day out and trying to get the right support. You’re doing the best for Tilly! I hope you get a bit of time for you though. It’s tough being super mum constantly x
2026-11-02 20:15:48
2
🎀 𝒯𝑒𝓇𝑒𝓈𝒶 🎀 :
Honestly this is my days over and over 🥰🥰
2026-11-03 10:35:42
2
Chelsea Fletcher :
I feel this, my 11 month old baby been NG fed since 16 days old fed every 3 hours for a hour and half, trying to make memories fitting it all in 🩷
2026-11-02 22:45:21
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Kirsty Nisbet :
Totally get this! Literally entire days have to be planned around when my little boy needs a feed
2026-11-03 09:18:40
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Nanny on the go- Emma :
Very true even though I’m fed 22 hours a day on a pump but have to remember all the equipment sterile water lots of meds it’s a lot big hugs your doing a great job x
2026-11-02 19:55:18
1
b_cat123 :
I know exactly how you feel my 1 year old is Ng fed and people don’t get why I have to work around her feeds , I always have to plan my day otherwise things don’t work !
2026-11-02 20:01:55
1
Danae || Mummy to 2 🩵 :
🙌🏼🙌🏼🙌🏼 I hear you! I see you! You’ve got this 🙌🏼🙌🏼🙌🏼
2026-11-02 19:48:37
1
Alyssa Pennington471 :
Please don’t feel alone
2026-11-05 16:11:05
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Laura Smith7215 :
[Heartwarming][Heartwarming][Heartwarming]
2026-11-02 19:50:12
1
Abdl Pamplona :
[Corazón rojo][Corazón rojo][Corazón rojo]
2026-11-08 12:53:14
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