@libra_nieves: I wish I had someone like me when I start d my medical journey, to watch and learn from.

libra_nieves
libra_nieves
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Region: US
Tuesday 03 November 2026 13:57:42 GMT
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user1956170513017
mhairi1 :
Having a child with complex medical issues I think what you share is very educating . You are a mum in a million and doing an amazing jobxxx
2026-11-03 14:53:54
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candynotcandace
Candy not Candace 🎀💅🌺 :
People have literally discovered “what their children had” (specifically San Fillipo Syndrome) and gotten diagnoses from watching TikTok videos! Keep doing you baby girl, YOU’RE MAKING A DIFFERENCE! 🙌🏻🫶🏻🩵
2026-11-03 14:25:38
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erinstapleton2
Erin Stapleton248 :
Hang in there, girl. I check in on you and your family daily. I agree with you. When my father was passing away it made me anxious to not know what to expect and I kept researching so I could know what was going to happen. What you are doing IS helping. Sending lots of love to you, sweet baby Lee, and the rest of your family.❤️❤️❤️
2026-11-03 14:04:59
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tammy.burt4
Tammy Burt :
Praying for you all!
2026-11-03 19:33:34
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buttons41318
buttons :
Part of advocating is educating! ♡ Keep pushing...I see your struggles and as a fellow momma to a medically complex kiddo...you are freaking on it! Lee is truly blessed to have a momma like you!
2026-11-03 14:05:52
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teresatrowbridge7
Teresa Trowbridge783 :
My hope is when you post,you know you are not alone, we see your strength and the care you give and want to give you support🙏🏽💕
2026-11-03 14:49:24
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jengame6
🩵Jen Gen🩷80❌❤️ :
I appreciate you awareness
2026-11-03 18:46:27
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b.eybee
bb 🎀 :
I check in on you and the kids almost daily and I want to tell you that “you’re so strong” but that doesn’t really seem fair. You don’t have a choice but to be 😕 I see you and what you’re going through and I pray for nothing but the best for you and your family ❤️
2026-11-03 16:16:25
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saleventures
Saleventures🫀 :
My son was having infantile spasms seizures. its because of other parents sharing their experiences that I even realized. his seizures looked like startle reflex.
2026-11-03 15:54:59
5
melwise78
Melissa Brooking :
I’m glad you are sharing so we can learn. Don’t stop doing so!
2026-11-03 17:03:26
6
jeanniebottlemorphs
Traci :
I have recorded my daughters seizures. for 1, I wanted my daughter to understand why she hurt so bad. and 2 to show the doctors.
2026-11-03 16:52:21
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nursejill66
Nurse Jill :
If you are willing to post Lee's journey, I think, as a medical professional, that it important to record and post his symptoms and signs. I agree with you.
2026-11-03 16:22:51
2
morbidgirl50
Kelli :
Yet this person too the time to watch
2026-11-03 18:03:46
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janasaxpiano
Janasaxpiano :
but you are showing reality its important to see that this can happen to anyone
2026-11-03 14:30:04
7
nan74998
Jean :
You are a brave person! I give you a lot of credit! I wish this didn't happen to your family. Still praying for you!🙏💐
2026-11-03 14:03:43
3
juice4life1002
MizzB :
You are a strong woman, a great mother and a blessing to many, even the haters. Keep being you and doing what you are destined to do. Blessings to you, that precious boy and the rest of your family.
2026-11-03 14:30:34
1
eljaroooo
Ellie Elle :
Thank you.
2026-11-03 16:02:40
0
chimommyof6
🐾🐾🐾chimommyof5🐾🐾🐾 :
Just going to sit with you
2026-11-03 14:53:28
2
ash.ann.aline
Ashley Ann 🇨🇦 :
your spreading awareness ... your sharing your experiences . this is a way of expressing ... your a amazing mom .. ive been watching you for awhile... let the haters hate.... you got this girl... 🥰🥰🥰
2026-11-03 16:17:31
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estherrosario30
Esther Rosario :
Facts
2026-11-03 18:40:15
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debbie.torres0
Debbie Torres :
You are helping others. You are so strong and are an amazing mother.🙏
2026-11-03 16:53:14
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kathydarling3901
Kathy Makamae🐊 :
I’m a retired paraprofessional. I worked with special needs people of all ages at different times throughout my career. I don’t know how many times I’ve been with a student having a seizure. It can be scary for someone who has never seen it. One thing that I always noticed was that when it happened, the other students present were very good at quietly following their instructions given by other staff members. I always praised them for that afterwards, and answered any questions that I could without talking about any private information of the student who was having the seizure.
2026-11-03 17:17:39
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violet_vibes11
Violet :
You are helping so many!! 💙
2026-11-03 16:54:15
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salena.hoskins6
Salena Hoskins :
I think your videos are amazing
2026-11-03 16:23:26
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kaiseyrwhite
Kaisey R White :
my mum had a seizure when I was younger I wish I had someone show me what it was I didn't have a clue I was terrified!
2026-11-03 14:59:21
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