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Tuesday 03 November 2026 22:56:03 GMT
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We are heading to one of the top EB centers in the country to establish care for Mackenzie! We’re hoping to get answers about how best to care for our sweet baby girl, figure out the best ways to wrap and address her wounds, when and if to get her a g-tube. We want to know what to expect in the next year or two. We know they may not be able to answer all of our questions, but we’re hoping that this will be a helpful trip! And nothing like a good road trip to allow a lot of time to reconnect with my husband 💗 #epidermolysisbullosa #epidermolysisbullosaawareness #butterflybaby #specialneedsmom #fyp #specialneedsparenting #medicallycomplex #raredisease #babytok #roadtrip #indy #parenting #momlife #letsgo
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Nada Dering Buat Kalian Lagi Ni eyy🎧🕺🎶#nadadering #ringtone #sounviral #arullksmusic #fypppppppppppppp
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