@saving_liv: Liv has a terminal genetic disorder called Sanfilippo Syndrome. She’s almost 7, and was diagnosed 4.5 years ago. #sanfilippo #fyp #specialneedsmom #savingliv

Brittany Hyatt :

YOU are the reason I know that Sanfilippo exists! ❤️

Celeste 01083 :

She is lucky to have you

12katespring34 :

You are the sole reason I know about sanfilippo

Terrie :

I see her!!! Such a beautiful little girl!!!!

jnava :

We would never have known about Sanfilippo syndrome without social media. I will be forever grateful. 💜

Shanny :

We see you. Even though we may not know you personally, we care. We care about you, Liv, your entire family.

ᛣ dolly ᛉ :

i love how she glances at u everytime she walks by lol

bk7893 :

I keep thinking Liv is side-eyeing you with a “you better be hyping me up mom” look. 😉

White.MirandaMae :

Grateful for you sharing sweet Liv with the world 💜

Raven King :

When I graduate high school, I am going to make it my MISSION to donate money, help create a cure, and help these kiddos however I possibly can and If takes my life to save her’s or other kiddos with MPS, I will not hesitate for a SECOND to give that up. These kiddos deserve a better chance at survival, even if it’s until like late 20’s to early 30’s. I love you and Liv so, so, so, much. Stay strong! You two can get through this! ❤️❤️❤️

Laura Quinn :

love from Ireland 🇮🇪 ❤️♥️💖

Olivia c 2 :

Love hearing your family’s story. I live in MKE and work with children with special needs and diverse medical conditions. Watching your videos reminds me to not only show consistent support to the clients(kids), but also their family and be a cheerleader for them too. 🥰

✌🏻🌸laineybug🌸✌🏻 :

when my kids were babies the TV stations went off at midnight. I almost lost my mind. No joke. 😳

K&E 🇨🇦🇵🇭 solo motherhood :

That is a beautiful way to look this situation 🫶🏼 and it is true, how advanced we have gotten in medicine and our own ability to use social media (for good), would be SO different and even more difficult back then

AmandaLyn13 :

What does she spend the majority of the day doing? I wish we could see more of yours and her day but I understand that would probably add stress to your day.

Shelly1966🇨🇦 :

Love that she is watching you constantly

Watcher_in_the_Woods 🇨🇦 :

Are Liv’s sensory inputs all working more or less regularly? I mean vision, hearing, smelling, touch and taste?

Laura Quinn :

Liv is so gorgeous 😍 ❤️

Anastasiia Kukol :

Laura Del Castanhel :

Love from Brazil 🇧🇷

MammaBearGC :

in all honesty, if you had done this at that time, you wouldn't know any different. we didn't have the Internet. we got connected through Drs and other healthcare workers. different times, different ways to make things happen.

hotwheelsfromheaven84🎀🎀🎀 :

I take her little lol as im havin an ok day today

p010105081125 :

💖💖💖

Cathy :

[Red heart][Red heart][Red heart]

madelines.mission :

❤️❤️❤️