itsbrittneelee
Region: US
Saturday 07 November 2026 00:42:54 GMT
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Renee :
This is tetanus, she needs the antibiotic for this. We are seeing this more often
2026-11-07 03:38:04
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Forest Dweller :
has she taken any flouroquinolone antibiotics like levofloxacin or cipro? they can trigger dystonia in some folks.
2026-11-07 05:37:54
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Sarah Smith :
that looks more like a seizure than dystonia. not saying it couldnt be both. my mom, myself and my oldest daughter have all had seizures and they can look like that. Post-stroke epilepsy is real. can come one weeks or years after. Best of luck to you and your family. Stay strong and keep advocating. Make lots of noise. Someone will hear you 🫶
2026-11-07 03:12:37
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n_unya76 :
her tongue was going blue so she probably wasn't getting oxygen. did you show this to the doctor?
2026-11-07 03:15:47
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Miranda Britt :
I had dystonia from anti nausea meds following an appendectomy when I was 12. It was like this. I also have POTS & pass out easily & I used to have seizures. Check her meds. You can DM me if you want
2026-11-07 10:41:56
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itsbrittneelee :
For those asking… she has been tested for stiff person syndrome, lymes and ebv. I agree it doesn’t look like dystonia, as I mentioned. However this is progressive dystonia as it only was in her hand and face for a few months and has worked its way down her body. Just in the last month, it looks like she may be having seizures as well. She is having an EEG done next week. She is seeing a neurologist but he keeps referring her off to the movement specialist that she can not get into until March. She is in the Seattle area if there are any doctors that are familiar.
2026-11-07 04:05:31
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kay :
I am so incredibly sorry. I am praying!!!!
2026-11-07 15:50:54
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Heidi Marteney :
I pray this reaches the right people. Someone has to know something. I am so sorry.
2026-11-07 02:58:31
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Krystle Lee :
My ex sister in law had similar happenings and she was finally diagnosed with pseudo seizures, she also had a stroke due to these episodes. The higher the stress the worse the episodes were! The strength that she had during the episodes was crazy! Hugs, prayers and I hope you can find some answers asap!
2026-11-07 03:08:55
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bobbie jean :
tetanus maybe? or pandas or the one thats like pandas. theres another one similar but not pandas, diff word. diffrentials for tetanus. go thru the whole differential diagnosis list for tetanus that the internet or ai will give u.
2026-11-07 05:18:56
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Cheryl Stricklin :
so sorry God Bless
2026-11-07 03:34:25
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Angel.Zalm :
Let’s get this out there! This has to be so scary for all of the family ❤️🩹
2026-11-07 02:57:42
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amarie :
Botox injections in the affected area can help reduce the spasticity and tone for patients with dystonia. however I agree with some other commenters that this also is presenting somewhat like a seizure which can be a comorbidity. particularly the way she passes out at the end which he's not uncommon post seizure. I hope that you're able to get her the care she needs. hugs to you and your family
2026-11-07 15:26:05
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Sheri :
Take her to another emergency room! They need to keep her until a specialist can see her. Sometimes that the only way to be seem
2026-11-07 02:52:13
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Vicki Hargis Winkelm :
This is awful. Your poor sister. My heart breaks for her. I sure hope someone is able to give you some info. A healthcare worker would be amazing. I will keep her in my prayers. ❤️
2026-11-07 01:33:07
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Denise Haycook :
Prayers for your sister
2026-11-07 03:36:32
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April R :
Prayers for your sister and your family. 🙏🙏🙏🙏
2026-11-07 14:46:18
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bethelhemdeneke7 :
Pls take her to church U ll see the goodness of God what is impossible for Man it’s possible to God so pls take her.may God help her Amen
2026-11-07 14:13:17
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Steph :
I pray in Jesus’s name for peace upon her, and may the Lord take it away in Jesus’s name amen 🙏
2026-11-07 06:34:48
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Sandy Wells :
Can you get her to Houston? Walk in Ben Taub ER. She'll be taken nextdoor via a tunnel to Hermann Memorial Neurology center. This is most likely a complex partial seizure disorder
2026-11-07 15:45:43
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Dial”era :
Sending prayers
2026-11-07 13:54:26
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AmandaYvonne :
antidepressants and antipsychotics causes this a lot of times and Drs don't warn of these medicine side effects a lot of times. I stopped taking a lot of mine because of some bad side effect some the caused me to try to end my life it was a terrible time. people please do your research before starting and stopping medications. alot of time they mess with other medications you already taking as well!
2026-11-07 06:06:36
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Sapphireblue76 :
Is it NFD neurological functional disorder
2026-11-07 05:33:02
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sarahcuppacakezz :
I have epilepsy...this looks like seizures.... sending prayers 🙏❤️
2026-11-07 11:42:49
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Nunya :
It actually looks like it could be several Movement Disorders; Cervical Dystonia, Body Dystonia, the face looks like Meige Syndrome- these can all be part of Segmental Dystonia. Good you're looking for a movement disorder neuro. What does equate to dystonia per se is the syncope (fainting). She could have Functional Neurological Disorder, but we're the internet, not drs. Contact Dystonia Research Foundation. https://dystonia-foundation.org/ . Best to your family.
2026-11-07 10:06:29
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