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@gwffkia005: #blackfriday #hoodie #fashion

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Sunday 08 November 2026 04:35:46 GMT
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##fyp ##fouryou ##partiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiii ##😻❤️‍🔥 ##aboniii❤🥰wjador❤🥰😍🇵🇸🇩🇿بااااارطاااجي
##fyp ##fouryou ##partiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiii ##😻❤️‍🔥 ##aboniii❤🥰wjador❤🥰😍🇵🇸🇩🇿بااااارطاااجي
Day 7 in the ICU, still fighting, and apparently my body has decided nothing can ever be simple. Right now, I’m receiving plasma exchange (PLEX) every other day to get my myasthenia gravis under control. Because I have Alpha-gal syndrome and a history of severe allergic reactions to blood products, they’re using albumin and predosing with Benadryl and steroids instead of donor plasma for my exchanges. The problem is that plasma exchange can cause low blood pressure, and since mine already runs low naturally, we’ve been dealing with that. So they’re making me do all the things to keep everything stable. On top of that, my fibrinogen levels are now critically low, which is another complication of plasma exchange. Fibrinogen is a protein that helps your blood clot. Normal levels are around 200–400, and mine are currently 85. 😔 The challenge is that correcting those levels may require blood products, which I’ve historically had severe allergic reactions to. So now they’re working on a plan to safely bring those numbers back up while managing the risk of another allergic reaction. And then there’s the hysterectomy… Unfortunately, my doctors are saying I need a hysterectomy, and they’re treating it as an urgent surgery. I’ve had severe hemorrhaging during my last two menstrual cycles, which my doctors believe has contributed to triggering these MG crises. After looking at the pattern of my hospitalizations and how they line up with my cycles, it’s become pretty clear that something has to change. But here’s the catch. I can’t have surgery until my MG is stable enough and my clotting levels are safe. So the plan is to finish all five plasma exchanges, get my numbers where they need to be, and hopefully move forward with surgery. Essentially, we have to get one thing under control before we can fix the next thing, and everything seems to be working against everything else. I’m exhausted. Physically, mentally, emotionally. I’m used to being strong, pushing through, and figuring things out. But I’d be lying if I said this wasn’t a lot. Some days, being strong is simply getting through the day, and right now that’s exactly where I’m at. The good news is that I’m responding to the plasma exchanges, and my MG symptoms are improving. I’m holding on to every bit of that progress. ❤️ I’m incredibly grateful for my medical team and everyone who has checked on me, prayed for me, and supported my family through all of this. It means more than I can put into words. Right now, I could really use all the positive thoughts, prayers, and good energy that these treatments continue working, my numbers improve quickly, and we can finally move forward. I’m ready to get out of survival mode and get back to living my life. ❤️ One day at a time. That’s all I can do. 🫶
Day 7 in the ICU, still fighting, and apparently my body has decided nothing can ever be simple. Right now, I’m receiving plasma exchange (PLEX) every other day to get my myasthenia gravis under control. Because I have Alpha-gal syndrome and a history of severe allergic reactions to blood products, they’re using albumin and predosing with Benadryl and steroids instead of donor plasma for my exchanges. The problem is that plasma exchange can cause low blood pressure, and since mine already runs low naturally, we’ve been dealing with that. So they’re making me do all the things to keep everything stable. On top of that, my fibrinogen levels are now critically low, which is another complication of plasma exchange. Fibrinogen is a protein that helps your blood clot. Normal levels are around 200–400, and mine are currently 85. 😔 The challenge is that correcting those levels may require blood products, which I’ve historically had severe allergic reactions to. So now they’re working on a plan to safely bring those numbers back up while managing the risk of another allergic reaction. And then there’s the hysterectomy… Unfortunately, my doctors are saying I need a hysterectomy, and they’re treating it as an urgent surgery. I’ve had severe hemorrhaging during my last two menstrual cycles, which my doctors believe has contributed to triggering these MG crises. After looking at the pattern of my hospitalizations and how they line up with my cycles, it’s become pretty clear that something has to change. But here’s the catch. I can’t have surgery until my MG is stable enough and my clotting levels are safe. So the plan is to finish all five plasma exchanges, get my numbers where they need to be, and hopefully move forward with surgery. Essentially, we have to get one thing under control before we can fix the next thing, and everything seems to be working against everything else. I’m exhausted. Physically, mentally, emotionally. I’m used to being strong, pushing through, and figuring things out. But I’d be lying if I said this wasn’t a lot. Some days, being strong is simply getting through the day, and right now that’s exactly where I’m at. The good news is that I’m responding to the plasma exchanges, and my MG symptoms are improving. I’m holding on to every bit of that progress. ❤️ I’m incredibly grateful for my medical team and everyone who has checked on me, prayed for me, and supported my family through all of this. It means more than I can put into words. Right now, I could really use all the positive thoughts, prayers, and good energy that these treatments continue working, my numbers improve quickly, and we can finally move forward. I’m ready to get out of survival mode and get back to living my life. ❤️ One day at a time. That’s all I can do. 🫶

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