@babybambioxo: I used to share my story hoping people would understand and support me and now I share it because it’s my story and I decide what it means. I don’t need everyone’s compassion, but I do expect basic respect. They see me on TikTok. They’ll see a 32nd clip of me dancing or they’ll see a live stream or they’ll see me having joy and being funny and laughing or having a good day they don’t see the years of anxiety, the tears, the frustrations, the depression that refusal to smile . The money spent the programs. I’ve tried the supplements the research the green juice, the disappointment that something doesn’t work they don’t see what it takes just to maintain a baseline. And there’s something heartbreaking about continually negotiating with my body just to participate in life. I’m not asking from anybody to feel sorry for me. I’m just hoping for better days for myself and I’m trying to make the most of my life now before it ends one day . People don’t know what goes behind the scenes or behind the screen behind the smile is a lot of emotional exhaustion and constantly hoping that something will help one day. My goal has never been to stay sick. My goal has always been to improve have more days and get as much as my life back as possible …. I’m sharing my reality with that. Millions of other people also experience that goes invisible . #pots #chronicillness #healing
