@yourfrendo: cubital tunnel release + ulnar nerve transposition + thumb CMC repair/stabilization (+de quervains) + ECU tendon repair / wrist stabilization… all on my dominant hand.. in two weeks! 🫠😩 If you’ve had any of these ⬆️ with HEDS, survival advice plz 🥺🙏 We’re planning to tackle my dominant arm first, then the left once the right heals next year. I’m seeing a hand/wrist specialist and plastic surgeon who has experience with EDS. So grateful to have randomly found her. But I live alone and honestly have no idea how I’m going to survive all of this solo. Especially knowing I have to do it all over again on the other side. 😭 Would love to hear from anyone who’s been through any of this! What was recovery actually like? Did you get full function back? How’s your pain now? What did you do about sensitive skin (hard casts/sutures/glue)? MCAS friends: react to PEEK Push-Lock anchors? Did you consider CCI/neck pain with your sling? Find anything that worked for floppy shoulders during recovery? Do I need 2 Squishmallows or 20? 🙃 (no fr) How much help did you actually need? What do you wish you’d known ahead of time? And the big one… Would you do it all over again if you had to? Please and thank you!! ❤️🙏 I hope I can pay it forward myself someday. #cubitaltunnelrelease #hands #ehlersdanlos #surgery
