@thepillowfortsystem: #ehlersdanlos #ehlersdanlossyndrome #eds #heds #audhd

The Pillowfort System
The Pillowfort System
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Region: US
Monday 09 November 2026 21:23:58 GMT
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gaslightingpercyjackson
dam.nico_di_angelo.simp :
THE TOOTH WIGGLING IS A HEDS THING??? AND WHY I STRUGGLED WITH CHEWY FOOD SO MUCH AS A KID?? I'M DIAGNOSED AND I DIDN'T KNOW THAT
2026-11-09 22:12:34
41
meeks_009
Mika🇨🇦 :
hold my hand...we can do this together [Heartwarming][Tears of joy]
2026-11-09 21:34:49
63
afteas2003
Afteas2003 :
I have had 5 DIFFERENT KINDS of doctors look at something and go, "Do you have hypermobile eds?" and I just have to go idk, probably. because no one has tried to diagnose it. And then they just write that down and continue to not try to diagnose it 😭
2026-11-09 22:21:27
16
allen.the.dwobbit
Len The Bard :
I've spent the last 5 years saying "I'm just an old soul I guess" I WAS ANEMIC
2026-11-09 21:34:14
7
olliefallsq
Ollie :
stop describing me right now
2026-11-09 23:51:56
0
aimes_rachel
Amy :
So under diagnosed. I swear I run into someone every couple months and am like “do you also have these symptoms too? Talk to your doctor!!!”
2026-11-09 21:31:24
40
sc0reo
Anthonie // Ants 🐜 :
is sensitive eyes a Eds thing?, I always say i have blue eyes that just look brown because there so sensitive. ...why do I relate to this so much bro...
2026-11-09 22:27:39
7
tagzpite
tagzpite :
Did I just get diagnosed
2026-11-09 23:27:03
1
khadijafoxowo
Khadijafoxowo :
THOSE ARE EDS THINGS?!!!! (Girl who has basically all this but she already knew she had EDS)
2026-11-09 23:40:54
0
gaelicheathen
Sam :
Bro you need to stop being so fucking relatable, I have enough going on atm
2026-11-09 22:27:56
2
apple_soudaz
AppleSouda :
In the process of getting a diagnosis, wish me luck 😖
2026-11-09 23:03:57
0
koolcat420
Tobias🍃𖦹 :
I've been told to someone who can diagnose eds but guess what there's none anywhere I live and I'd have to go into the mainland😭
2026-11-09 23:32:50
0
insanestranger
Insane Stranger :
Okay that last one hit so hard omg… like most of them yeah i already knew but wow that last one got me in the soul
2026-11-09 23:02:01
0
_scarlet326
Scarlet :
huh... I... oh. OH! Hmmmm well guess I have something new to talk to my PCP about
2026-11-09 22:10:45
2
lemonpoppyseedmuffin
lemonpoppyseedmuffin :
i actually am diagnosed😌 but doctors have given me very little tools
2026-11-09 22:03:49
3
song_of_a_banshee
dani Lacou :
...i did not need to be call out this badly...i am seeing a doctor tho
2026-11-09 21:38:44
5
itssparklyrach
Ihateithere :
The moment you as an EDS person realise that if you were a dog would have floppy ears.
2026-11-09 22:05:52
3
snowlily123
🏳️‍⚧️ Snow Lily 👁️ :
Sigh… my friend sent me this to convince me. I’ll add to my list of things to ask my doctor. 🫩
2026-11-09 21:30:51
9
non_boy_inaryinadress
Bee/Kitty :
i hate that i deal with all of this -.-
2026-11-09 23:00:16
1
coryn_lann
coryn_lann :
Kind of idly wondering how the Facial Hair growth with the T will turn out.
2026-11-09 21:53:07
2
the.pack.system
thepacksystem :
the amount of times I have to throw my hip back into to place because it dislocates while walking down a hallway is TOO MANY. but the look on people's face when I just *POP* that back into place using a wall - it's priceless.
2026-11-09 23:35:35
1
x_hyperfixation.asylum_x
➤ Hyperfixation Asylum Co ✞ :
Mid getting diagnosed:D - actively going to urgent care for my back lol
2026-11-09 22:06:04
1
gythaoggdaniell
GythaOggDaniell :
well I guess I need to get checked out
2026-11-09 23:25:35
0
jordanray547
jordanray547 :
One of my most used "joking" phrases was "everything hurts and I'm dying." Just got diagnosed in August. 😅
2026-11-09 23:24:32
0
axel_jordan761
axel_jordan761 :
are the sclara around your eyes blue(the white part near your iris) I hear thats a common symptom associated with connective tissue disorders
2026-11-09 23:18:20
0
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