LaurenMarieWritesRomance
Region: US
Tuesday 10 November 2026 02:09:35 GMT
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Disabled and Proud :
Also, if your POTS started after a viral infection (especially Mono or COVID) please, please, please rule in/out myalgic encephalomyelitis (ME/CFS)! My ME symptoms were assumed to be from my POTS until I rapidly deteriorated due to overexerting and pushing through my symptoms. Catching ME early and learning to pace and try off label treatments (currently no FDA approved treatments) is so incredibly important to reducing severity.
2026-11-10 19:39:09
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Quinnlizzy55 :
What apps do you use to track your blood pressure/pulse ox/sugar
2026-11-10 10:31:16
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Ash :
Tried to get a tilt table. They couldn’t do it bc I was having so many functional seizures. Idk what to do with that.
2026-11-10 11:42:00
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jessicabradley763 :
They have me starting with a cardiologist but maybe I should be starting with neurology?
2026-11-10 12:00:11
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