Dr. Alexis,MD | Rheumatologist
Region: US
Tuesday 10 November 2026 14:24:35 GMT
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Ghost and Lady :
I’m so scared of the lip biopsy though. Like what if all my symptoms are actually just EDS or fibromyalgia? I’d hate to go through the biopsy just to get a negative result
2026-11-10 20:24:27
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mmcbridemd :
I have severe dysautonomia, small fiber neuropathy. And yeah, episodes of severe dry mouth and chronically dry eyes that in the grand scheme of things have been the least of my worries
2026-11-10 21:56:45
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Cora :
All of my Labs are coming back saying no autoimmune except for my Hashimoto’s. My primary care doctor ran labs for: RHEUMATOID FACTOR and NUCLEAR ANTIBODY (ANA) IFA. All came back normal. But I have all of the symptoms and not on medication to cause it.
2026-11-10 16:26:03
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Lori | Farthest Star Studios :
I’m so glad to hear this. I have Sjogren’s but have more of the Neurological symptoms, pain, and dysautonomia.
2026-11-10 19:55:58
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Rissa :
True I have positive SSA with minimal dryness I have more of joint pain with Neuro involvement & horrible GI issues
2026-11-10 16:27:35
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Heather 🇨🇦 Sjögren’s Roadmap :
Yes 🙌🏻 shout it louder for the people in the back!!!
2026-11-10 14:32:01
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Dee_Marie89 :
My rheumatologist did a full autoimmune panel and sjogren’s came back negative. I saw a neurologist who ordered “early sjogren’s” blood test and it was positive. I had the lip biopsy to confirm. What a long and exhausting process to get this diagnosis
2026-11-10 19:56:17
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GwH :
I have been suffering the last 5 years, But my dry eyes , Shirmer test 0mm only came on last summer. Most of my symptoms are demylinising polyneuropathy and head pain.
2026-11-10 14:37:02
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Melissa Logs In :
I really don’t want to have that lip biopsy. I’ve heard even that’s not reliable and healing can go wonky. But I did just confirm my corneas are 2+ damage or whatever the terms are as well as something about oil production blockages? from ophthalmology. I never actually clocked my dry eyes much because there are way worse symptoms. But the double vision thing is one of those way worse symptoms and it turns out it’s due to the damage from said “dry eyes”, so what do I know?
2026-11-10 17:19:30
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Heather Deane :
my dry eye screams sjogrens but my labs are negative so it is frustrating. I am exhausted, everything hurts, I have severe dryness and mental fog with the fatigue.
2026-11-10 20:55:35
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Jody | Sjogren’s Educator :
1000% TRUTH
2026-11-10 17:10:27
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Lynsey :
my lips already have very weird reactions to stress, so scared of what they'll do after lip biopsy but I fear I need one.
2026-11-10 20:10:04
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HollyOlivia :
Mine causes disability. I’m only 58
2026-11-10 19:34:27
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Highandunique91 :
😑 idk anymore
2026-11-10 18:33:16
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Mommajax :
We are looking at Axspa for me but I'm wondering about sjogrens. I have dry eye and I recently considered that I bring a water bottle to bed and drink from it all night. I also have idiopathic neuropathy.
2026-11-10 18:51:14
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SterlingCripFrog🐸(they/them)♿ :
Soooo... I need to know more.... Please....
2026-11-10 17:33:01
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mom 2morrow :
ent(who's removed 3 Salivary gland and lymph node), eye doctor, dentist all agree sjogrens, but because negative biopsy and ana rheumatologists says no.
2026-11-10 19:35:59
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Laurie :
💯💯💯
2026-11-10 16:26:34
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shylahbean6 :
💜💜💜
2026-11-10 19:14:07
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