hypermobilitydiaries
Region: US
Wednesday 11 November 2026 16:30:03 GMT
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Amanda :
HEDS also exists
2026-11-11 16:50:36
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Onlyfroggs :
Being double jointed is always highly suspect of a hyper mobile connective tissue disorder (of which there are many) and people who experience is should get checked out if they’re experiencing pain.
2026-11-11 16:52:25
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Lyssa | 🍓 :
I asked my pcp to send me a referral for genetic testing for veds and she said it would be tricky bc it’s too trendy of an illness. I didn’t even know how to respond.
2026-11-12 02:31:14
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Laura :
Louder sister - from someone with aEDS and a 9/9 Beighton at 33
2026-11-12 00:29:53
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