@bseizurefree: Replying to @gigichaos315 the second time we had him tested was a much harder pill to swallow. It’s like his brain got stuck at the age where his seizures hit him the worst. I will say the second testing done I don’t know how accurate it was for they didn’t use his iPad to interact with him as much as I thought they should. That’s his main form of communication and could’ve made a big difference in his testing age. #age #life #fyp #development #dravetsyndrome

demongg87 :

Can you remember what life was like at 3? Just thay feeling of absolute safety, unconditional love, they biggest decision being which one of the favourite toys get the special treatment thag day, maybe getting a special snack. Being 3 is amazing and he makes it look so cool 🥰 I didn't know about Dravet until B, you're doing great things!

bigape0000 :

With him closing in on puberty how do you think things will change and how will you handle them.

❌gigichaos315 :

I am shocked they didn’t use his communication tool. I think B’s receptive language skills are higher than results suggest. He seems to comprehend his environment more than a 3yr old would. His use of his iPad alone suggests the same. Hopefully the trial will get the seizures under control and break through the wall that has B stuck.

Delilah smith :

these sweet boys are having fun 😊

sharonaugust :

He looks so happy

John Boyd :

all that matters is that B is full of love and happiness

🦄 Mellow Unicorn 🇦🇺 :

My 11yo is cognitively about 5-6. he has asd3 & intellectual disability (among others). I have a 6yo wih hyperlexia, so very different as well.

🫧🌙✨️ :

why keep his age private?

jack :

Leslie :

Hurry up December. B is waiting 💕

Alina_DravetWarrior :

💜🫶🏻

Sweet KP :

💕🙏💕