@askdrmom: So does this help explain it better? Go ahead and share so that others learn about it. ##invisibleillness##pots##mecfs##longcovid##doctormom
I'm fatigued; it's a full body thing. But my nervous system is damaged - always activated - so I have insomnia, too.
2026-11-12 03:07:08
17
Amanda O :
I have MS and this is how I feel every day. I often describe it as feeling hungover (but still slightly drunk) with terrible jet lag. It’s so debilitaing.
2026-11-12 16:45:40
1
Jill Rogers :
If I try to walk for exercise, even less than half a mile, I get so fatigued that I get dizzy and nauseous. Everyone tells me I just have to work through it, but it makes me so physically weak for days afterward. I often have to sit if I have to walk more than a few min so I don't pass out
2026-11-12 16:14:35
1
Michelleintheoc :
Fatigue is when u rest but u are still tired.
2026-11-12 06:43:25
1
Shariefa :
No one understands, I feel like I have a brick on my head and walking through mud
2026-11-12 05:43:04
2
Njunjus Mom🇿🇦🇿🇦🇿🇦 :
I am always tired😫😫😫
2026-11-12 11:43:52
1
Thelma Adams :
been feeling so bad for weeks.. the fatigue is so bad. I wana cry.. but yeah Noone understands.. and im stiff as hell .. cant sleep it off at all
2026-11-12 07:41:17
1
Annie :
My extreme fatigue feels like trudging through mud, entire body feels heavy and you’re a little dizzy/nausea
2026-11-12 05:31:48
5
Nopenottoday :
It's the walking and thinking through molasses fatigue. Sleep doesn't fix it.
2026-11-12 00:04:57
5
Maricgel :
i feel so heavy
2026-11-12 00:12:25
6
Mint :
Sometimes it does feel like narcolepsy - like I can't even drive 30 minutes home because I'm nodding off every 10 minutes of driving. Sometimes it is that crushing overwhelming feeling where my body feels heavy. Always take naps during the day though. It's very difficult to parse things out because maybe I do have different things going on but yeah. Diagnosed Hashimoto's/hypothyroidism, inflammatory arthritis confirmed by neuroimmunologist but waiting on diagnosis from rheumatology (most likely Lupus, Sjögrens, and/or UCTD) and have a history of sleepwalking, so... Going to ask PCP for sleep study tomorrow to see if I can treat any of it individually or if I just need to wait on autoimmune meds.
2026-11-11 23:41:21
4
LouKnowWho2 :
i have had POtS/CFS/EDS for 30yrs and not a day goes by that I don't have to fight the urge to sit down or even lie down constantly.
2026-11-12 09:00:28
2
bjoyer🇨🇦 :
the best example I can share is that I love LOVE being at the mall, it always perks me up. I know it's bad when I go from store to store lethargic, I find clothes I 💯 love. the idea of getting my size, carrying it to the change room, trying on and waiting at the cash is insurmountable. I consider skipping the change room but the cash and carrying the bag is too much. I buy a coffee instead hoping to perk up in the car but instead I walk through the door done for the day. For context, for decades I ran 400kms/month (7miles/day) with tons of energy for the day.
2026-11-12 00:06:09
1
Shants :
yes yes this is exactly what I've been trying to figure out...I had covid 3 times and now I have heart issues. and hypertension and lately I'm constantly fatigue I can't shake it off I get enough sleep but still feel extremely tired like right now I hate it cause I use to be fulla energy
2026-11-12 06:13:45
1
mayweemonkey :
Ya and like narcolepsy….
2026-11-11 23:49:19
1
Deon :
inflamation..arthritis..long term extreme fatique
2026-11-12 08:17:48
1
Rachmat Abrahams :
i feel like that many times
2026-11-12 05:18:27
1
Elisa :
Yes. I have Sarcoidosis
2026-11-12 03:17:42
1
Halloween Jester :
Yeah same.
2026-11-12 04:17:22
1
Tsu_Do-Nym :
Mitochondrial inhibition
2026-11-12 00:02:06
1
### :
Nicotine drops, patches or gum.
2026-11-12 03:41:47
1
TheStig :
I have ankylosing spondylitis and fibromyalgia. It’s past the point of fatigue into pure exhaustion. It feels like walking with wet jeans and a hoodie on, in quicksand, your skin is on fire, your bones feel like you've been outside in Siberia in the dead of winter with a swimsuit on and your hair hurts for some reason 😅
2026-11-13 18:49:42
0
Anne Enns Quiring :
I get the kind of fatigue you described fairly regularly. I also get an even more intense fatigue episode that stops me completely and puts me out for several hours and sometimes up to several days. These attacks come on suddenly and very quickly. I experience them every few months.
2026-11-13 04:38:07
0
### :
Check out Dr.Ardis
2026-11-12 08:42:09
0
Becky Phillips :
Yes!! I am 4 years post stroke and the fatigue is real.
2026-11-12 14:31:45
0
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