I've been anywhere from 13 to 20. symtpms are shortness of breath, rib pain, general fatigue, chest pain, heart pounding. I have heavy periods. but I also have some gastro stuff going on. idk my doctor doesnt seem to care bc all other labs normal except for low iron saturation
2026-11-14 16:16:29
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LeighlaleePCB :
Flintstone gummy vitamins with extra iron and cream of wheat 🌾 every day
2026-11-14 01:41:21
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Itty Beck :
im just starting this journey now that someone pointed out my ferritin going down down down
2026-11-14 16:10:29
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Erin Kat Dodson :
I am the same and it is very scary.
2026-11-15 21:28:44
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Bug :
I’m 4 weeks out from 3 infusions. I am feeling a lot better. I have my labs re checked in January
2026-11-14 14:07:17
1
Leesi-B :
Also 43 here, my level was at a 5. I got 6 venofer iron infusions and it only raised to a 49 which still isn’t great
2026-11-12 22:35:36
1
Sari_4B :
Leaky gut?
2026-11-14 00:51:40
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Lara | Live more Life :
There’s a lot of info on tik tok. I see lactoferrin. Why did you get colonoscopy? Where you having stomach issues?
2026-11-13 03:28:26
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Marisa Danielle :
The iron infusions helped a lot but I did go back down each time. I am similar to you, 44 now, probably been anemic/iron deficient for a long time due to diet and periods. I now take Three Arrows Simply Heme iron and it is saving me from having to do more infusions. The Iron Protocol group on FB is super helpful. ❤️
2026-11-13 05:29:23
1
heypalisade :
It’s so frustrating. Hopefully your hematologist can help you get those infusions covered. I started a lactoferrin brand a couple months ago and we do have some tips about supplements on our page. I really hope you feel better 💜
2026-11-13 23:33:58
1
AMdesign :
Is it Dr Meschi?? He’s WONDERFUL
2026-11-13 03:57:38
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HeatherG :
same idk who i am mentally physically im ewww... mine is a 5. I hate this 😒
2026-11-15 17:56:29
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. :
Nam myoho renge kyo
2026-11-13 01:30:14
1
🌸GiGi🌸 :
I can completely relate to this! I have to have infusions multiple times a year. It has helped me but I do feel like it’s just a bandaid for me.
2026-11-13 02:48:28
1
jen izzy :
Aww I feel ya girl! 🥹 We got this 🙏🏼
2026-11-14 04:17:22
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Kate :
I went from level 7 to 11 to 5 in 3 months.
2026-11-12 20:20:32
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Leesi-B :
You need infusions, it’s crazy that your doctors are not getting you in for and infusion asap, it’s actually so dangerous for your heart and other organs to have such a low level.
2026-11-12 22:37:33
1
Leesi-B :
Yes. It’s the worst. I have lost my sparkle, I lose more and more hair every day
2026-11-12 22:34:47
1
kaylaj :
mine is 84
2026-11-12 20:36:34
1
Shelby :
lactoferrin supplement.
betaine hcl with food helps absorb iron.
2026-11-13 11:28:50
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HeatherG :
I had the bandaid infusions... it drops again for me anyways
2026-11-15 17:59:11
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Ali Joan :
Friend! Text me! I have all the info about this!
2026-11-13 13:19:01
1
MaliCor :
There's a group on FB called The Iron Protocol. I highly recommend joining.
I'm learning a lot on this journey.
I'm now taking ferrous bisglycinate (easier on stomach) with lactoferrin and 2 hrs after, copper. 2 hrs after that, zinc.
My ferritin was a 6. I had 1 infusion of 300mg venofer and my ferritin is only at an 8 now.
I have so much inflammation in my body. Ferrous sulfate causes inflammation. Try ferrous bisglycinate 🫶🏼
2026-11-15 08:14:30
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Masha Greg :
♥️♥️♥️
2026-11-14 15:10:10
1
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