Kathryn Denny
Region: AU
Friday 13 November 2026 10:28:06 GMT
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AshleeMN :
Don’t forget about Ryan’s Rule too honey, don’t leave until they listen!!!
2026-11-13 11:21:26
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Kayla Mclarty :
what’s ur vinted username x
2026-11-13 10:38:45
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Lucky lucy :
Take him to the emergency ward and go through that way. Or call an ambulance when he’s having one
2026-11-13 10:34:54
178
shanimjones :
Honestly disgusting they expect him to wait like what do you mean!
2026-11-13 10:33:26
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Bree | mumma.in.motion :
The fact that you have to advocate this hard is insane! 😔 Jassy’s so lucky to have you both as his parents 🤎
2026-11-14 07:56:04
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ExxVillAiN :
A student of mines mum is a PICU seizure specialist nurse. She’s retired. I can maybe ask her about Jassy?
2026-11-14 05:10:54
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Sarah :
They want 6 recorded “events” if not recorded the comments are normally “ mother states she doesn’t know the cause “
2026-11-13 11:19:42
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HollyAnne :
You are the BEST mum! 🤍
2026-11-13 10:35:03
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The spiced ginger :
Take him to emergency each time, call Ryan’s rule and get them to write in the discharge summary why they don’t feel it’s urgent enough to been seen immediately by neurology, I guarantee you’ll be seen asap
2026-11-13 23:49:35
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Casee Lee :
I’m 28 and have unexpected/undiagnosed seizures. I’ve had MRI’S, EEGS and nothing ever shows up yet I’m expected to just keep taking my medication and keep having them? It’s awful. I wish it would stop.
2026-11-13 20:16:01
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mymedpouch :
💯 go to emergency and make them help him!! Good call mumma!
2026-11-13 22:49:48
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Just a NZ Step Mum :
Just want to say I’m so incredibly sorry your just going round and round and round with this. You are doing an amazing job advocating for him and your whole family xx
2026-11-13 18:17:15
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Tayla • Boy mum • UGC Creator :
I would 100% go to emergency and call Ryan’s rule! They need to take it seriously! Poor little guy, your doing amazing mumma 🤍
2026-11-13 11:39:38
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maddison1108x :
Couldn’t imagine how scary this would be for you! Omg, that’s crazy they are making yous wait
2026-11-13 20:53:09
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Brittnhertribe7🍒 :
I’d be demanding an MRI and wouldn’t leave the hospital without it being done. Sending big hugs mama x
2026-11-13 15:06:35
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Pamela Ava :
Have you considered going privately with the neurologist? Would be a lot more timely x
2026-11-13 11:17:39
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Jadee 🦋 :
100% emergency put your foot down and don’t leave until they listen, also make sure you have ave them on camera so they can’t send you home, we were sent home for not having it on camera we called an ambulance back an hour later and got a big one on camera.
2026-11-13 11:11:15
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leigh1986 :
This makes me so upset! My son had his first seizure in his sleep, went to emergency via ambulance got told to see a private neurologist and get a mri ( private cost $800 ) so we booked that in got that done and he had another seizure on the toilet 1 week later, back to emergency overnight stay and they have him an anti epileptic medication via a drip. Got discharged with a referral sent off to the neurologist at another hospital, got the phone call from that hospital on the way home and got told to come straight in for an eeg, eeg was normal but neurologist said because he has had 2 episodes within such a short time frame he is epileptic and started him on meds! He has been seizure free for nearly 3 years and I’m so thankful he was seen so quickly. I hope everything gets sorted asap as it absolutely breaks your heart seeing them like that.
2026-11-13 11:40:27
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user100003335555 :
Off topic, but hot tip ! PUT BUTTER ON BEFORE THE BISCOFF
2026-11-13 20:08:32
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motherduck :
our son has epilepsy alongside his ASD. We waited 11 months for an EEG and another 11 months for him to see a neurologist. it was his paediatrician that started his antiepileptic medications after around 6 months of seizures. multiple ED presentations via ambulance. I feel you. hopefully you are better resourced in your state. there was a recent parliamentary inquiry nationally into epilepsy ❤️
2026-11-13 11:28:34
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Belinda | Mumma x2 🧸🤍 :
The medical system is a bloody joke
2026-11-13 10:42:38
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Tel :
Was going to say, if concerned, take him to emergency
2026-11-13 10:40:53
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Marni Abbott :
As others have said in the comments, call the ambulance every time he has one. And make sure to show them in emergency all your videos etc.
2026-11-13 21:33:20
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Emily :
Take him to a Ed every time.
2026-11-13 21:17:55
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Jesus or Nothing ✝️ :
Keep taking into emergency it’s the only way you will be able to get support honestly have as much documentation as you can with in Australia I am so sorry there isn’t any help
2026-11-13 23:31:16
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