Heather - Living with Lupus 🦋
Region: US
Friday 13 November 2026 18:45:20 GMT
865
94
39
0
Music
Download
Comments
Lise :
I hit an all time low the other day, was at Costco for just about an hour and needed to sit so bad I plopped down on a display of plush toys 😭 why does it do this to us?!
2026-11-15 02:47:22
0
Ana Garcia :
lupus is like wheel of fortune 😭the wheel keeps on spinning to surprises💀💯
2026-11-15 07:38:03
1
Shona Finesse :
Yes this is me everyday I have to force myself to get up and walk , walking feels like a job . Smh
2026-11-15 00:53:37
1
-Gia- :
I think the marathon is a great comparison to how I feel. So weird. I find myself always trying to figure out what caused me to feel bad. Like, what did I do to cause this? It can make me spiral, so I have to stop myself 😅
2026-11-14 00:57:35
0
Taylor Dorsett :
Same here I’m on the couch with sore legs and I did nothing out of the ordinary.
2026-11-14 17:17:13
2
tammygrammy608 :
Yep, that happens to me too! 48 hours after an active day- I crash!!
2026-11-14 03:22:33
0
Jennipah💜 :
the weather change and barometric pressure affects us with lupus. it sucks i agree! this morning was brutal for me
2026-11-13 22:57:49
3
Rebecca :
I hate it when it feels like I have cement blocks tied to my arms and legs. It’s horrible! It’s so unpredictable😩
2026-11-14 02:58:33
2
DelonnP :
It is hard sister, HARD living with this.
2026-11-13 18:52:27
3
Neecie Moon :
Yup
2026-11-14 00:16:16
1
dreacero_ndspoonie :
That's the weird thing about PEM ... it'll skip a day and bite ya in the butt.❤️
2026-11-13 20:48:28
1
Barb B :
Are you along a coast line? I’m on east coast, 10 min from Atlantic and was told people with autoimmune diseases are in for it with the barometric pressure changes that are coming
2026-11-14 03:45:09
0
mlovedavem :
Same here. Legs achy almost every day. Or whole body achy
2026-11-14 03:28:57
0
Beth Hoover Krygoski :
Yessssss! Mine do the same!
2026-11-14 02:30:25
0
Aleah Shayna :
What do you do for work? I have been working from home as well, but that may be coming to an end. Also, my benlysta infusions have been taking forever to get my first one. Ugh.
2026-11-13 18:52:44
0
mandy | autoimmune & life 🦋🐢 :
Do you have compression boots? They help SO MUCH get better circulation and swelling down for me, and decrease aches
2026-11-13 19:54:22
0
Zebra Jax :
That is how PEM happens to me, it is usually delayed by 24-48hrs. it's so weird
2026-11-13 19:46:10
0
Aleisa_mccauley20 :
It’s so stupid. I hate her! Make it make sense. 🤪 Mine have been that way. Almost like some one wringing out your muscles. Our weathers been wonky though.
2026-11-15 05:55:26
1
To see more videos from user @heatherlivingwithlupus, please go to the Tikwm
homepage.
