@kelseyalfred: Replying to @Sara I’ve noticed there’s a lot of unnecessary negativity in the rheumatoid arthritis community, especially when it comes to medications. I completely understand that people have difficult experiences, and there’s absolutely a place to share them. But we also need to recognize how harmful it can be to constantly share extreme, worst-case scenarios without considering the fear it can create for someone who is just starting treatment or trying to make an informed decision. This is exactly why I hesitated to share my medication for so long. I want to help create a safe space where we can share, learn, and support one another without making people afraid to seek treatment. We can be honest about our experiences while still being mindful of how we communicate them. ❤️ #RheumatoidArthritis #SticklerSyndrome #ChronicIllness #ChronicIllnessAwareness #RheumatoidArthritisAwareness

Kelsey Alfred
Kelsey Alfred
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Sunday 15 November 2026 02:01:44 GMT
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chrisdaly7
Chris Daly :
have you taken hydroxychloroquine i just started and waiting for it to kick in!
2026-11-15 02:35:58
1
tinkerbellgrad
Alicia :
I need more positive stores!!! ❤️
2026-11-15 02:31:17
1
dyv6lieu1dra
yolandi :
totally, and I guess its different for each person. its scary enough as it is
2026-11-15 02:47:56
1
tesapizza
Tesa :
Thank you for speaking about this! It’s definitely not helpful to comment things like that. We all have different bodies that will react differently to different things. I like that this is a safe space to get information about the RA/ Autoimmune journey without having those types of comments creating more fear. 💗💗💗
2026-11-15 02:09:33
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