Mary | Life alongside Cancer✨
Region: GB
Monday 25 May 2026 19:10:10 GMT
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Crystal Marie :
The fatigue from everolimus is so awful
2026-05-26 11:37:03
8
mariespeaks :
I didn’t think the ‘no bell’ would bother me as much as it still does.
2026-05-26 06:13:57
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Siren :
The no bell thing hurts way more for me than I thought it would. Also, the whole "well, you're not like, sick-sick. Because you're not on *real* chemo and you still have your hair, right?" thing drives me up the WALL.
2026-05-26 23:26:21
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Val :
Better than IV chemo
2026-05-26 13:47:56
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user1552619709777 :
I'm on Capecitabine tablets. Brutal side effects. Fatigue is off the scale every bone in my body is exhausted, hands and feet syndrome. Red raw hands and feet fingers cracking. I had to come off last week. Being seen today to see if I can resume my treatment. Mouth ulcers, nausea, diarrhea also. I've completed 5 cycles 3 to go but had a blood clot, Salmonella and a high temperature and was in hospital x 3 times for these. This resulted in me also missing half of cycle 3 and the rest week and week after too. Best wishes to anyone doing chemo keep positive and keep fighting 🙏💪👍👏
2026-05-26 07:20:44
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Ramnik Kacha :
Ive felt this for you. My Dad was on tablet Chemo for years. I know what you mean by a life run on tests and appointments.
2026-05-26 08:14:31
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Pauline :
I’ve just come off a combo of Everolimus & Lenvatinib after 18 months.
2026-05-25 22:40:42
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Faybellina 🌙🧿🪬 :
I’m on 2 different chemo tablets too stage 4. I’m on them for life or until they stop working. Sending love to you both x
2026-05-26 06:21:32
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user1653736064 :
you are definitely right I'm on that treatment and I fully understand good luck Tom we got this
2026-06-20 23:25:26
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weedotdot :
I was ment to read this today !!! im on cycle 3 , not yet had mouth ulcers yet , I've never felt so exhausted in my life 😴
2026-06-20 20:22:51
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eric 🏳️⚧️ :
My mum went through both intravenous and oral chemo at different times, neither were easy as much as some would like to think. Wishing the best for Tom in his fight
2026-05-26 15:01:54
7
Joe320195 :
I’m on imatinib for CML and this is soo true
2026-05-26 14:15:13
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oklahoma gal :
stage 4 breast patient. age 47 on oral chemo. the fatigue has given me insecurities and anxiety. I have always worked a demanding job on my feet and it doesn't seem possible that this disease has slowed me down since age 33. sending many blessings and well wishes. ❤️
2026-05-27 07:20:39
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Jenna :
The amazing thing is that the bell can stand for whatever you want it to stand for- and as someone who has worked around a cancer center with one: you don't need permission to ring it❤️Prayers for Tom (and fam!)
2026-06-18 02:40:50
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MissJj :
This is my life but with imatinib💊
2026-05-26 10:10:09
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u know it ... :
So true in so many way Im 2 years in to 3 years of immunotherapy... always told "you look well!" If they only understood our journey.... Physical and mental are 2 different things and visually both mean nothing .... Keep fighting Tom .. u are not alone 💪
2026-05-26 15:27:07
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Follow the cows 🇫🇷 :
Me too on xeloda, been working for 4 years now, lots of side effects and everyone forgets your on it. Good luck, keep fighting 🥰🥰
2026-05-26 15:02:44
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ᒍᑌᔕTᗯᗩᑎᗪᑌᕼ :
🩵 heart, thoughts and prayers are with you both every single day. You remarkable people, you’re smashing it tom! Keep goin laaa
2026-06-02 08:51:57
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graingemeister :
good luck mate 👍
2026-05-26 15:29:49
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00⁰000000 :
you absolutely can go ring the bell! does the place where you have bloods done or the outpatient department have a bell? when you get the all clear or finish the treatment, you find that bell and ring it!
2026-05-26 20:01:15
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Donna McGrath :
No one can ever understand that fatigue that goes with Cancer treatments unless they've been through it. They just think it's as easy as having a nap and you'll be all good.
2026-06-01 11:01:48
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BeBesBrokenBody :
Cancer treatment no matter the type is gruling. The amount of times I hear "you look well". So many of the side effects are not visible. Sending ❤️
2026-05-30 13:14:36
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marksanders110 :
Same here Tom. I’m on one of the latest drugs for my Leukemia and so far I have not had huge reactions to it. Keep going buddy.
2026-05-29 00:49:11
1
Georgia Limbear :
I am on chemotherapy tablets not been easy ride
2026-05-26 15:40:00
1
MM :
You have my sympathy. I was on 8 sessions of chemo drip then 14 days chemo tablets. 1 week of then all over again. You don’t live you fighting to live and every day is just step by step. Hang in there buddy we are all in it
2026-06-01 07:22:09
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