@righttrackchiro: Scientists discover 35 unexpected proteins in blood linked to Ehlers-Danlos Syndrome (hEDS)! This breakthrough proteomics study reveals complement system dysfunction, potentially unlocking new diagnostics, treatments, and explaining immune issues like frequent infections and mast cell problems. It's all connected through connective tissue! #EhlersDanlosSyndrome #hEDS #Proteomics #MedicalBreakthrough #ConnectiveTissue #Health
I knew it was eventually going to be found to have something to do with the immune system, there just too many of us with immune issues
2026-06-14 06:16:38
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🧜🏻♀️Brenee ❌ :
I have 8 kids with EDS, we all have one form of immunity responses, MCAS, inflammation, keloid scars, Chiari Brain malformation, mitral valve prolapse, POTS, dysautonomias
2026-06-14 18:47:27
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low battery :
Anyone else also Rh negative?
2026-06-15 14:15:56
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Loki_n_Lola_sweetlife :
And I got laughed at by the Dr when I asked to be tested for it…
2026-06-15 19:58:59
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Mony Q :
I know what you're talking about...right now the second largest study of its kind in the world is underway, the results will start coming in in December, my sister is part of it, the first study had a small number of participants, the one they're doing now is called HEDGE
2026-06-13 21:50:38
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msnmymnd :
How do I get this blood test?!
2026-06-15 18:45:27
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Adri Garcia :
hold up hold up hold UP... when my kid was born they said he had an issue with his labs... explained at first that there was signs that proteins were not being digested correctly..
thought he had a kidney or liver issue... they sent our labs to a specialist and they send it was just an extra protein 😭 and nothing to worry about.... and Ive just been diagnosed with ehlers... what sorts of of testing should we be asking for?!
2026-06-14 21:53:42
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EstelleintheUK 🇬🇧🇵🇸 :
Im so tired 😔😔😔
2026-06-13 09:58:33
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Autumn :
That’s amazing!! I love when we understand more of conditions. I’m a migraine sufferer since I was 8, I’m 45. Recently, migraine research has gained much more information and I’m excited that we’re finally being fully recognized.
2026-06-16 04:55:09
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B :
Going through an absolutely horrible flare and this made me feel so validated and now I’m crying. This sh*t is relentlesssss. I wish they would listen to those of us going through it MORE and believe us and not just prescribe antidepressants and anti anxiety meds.
2026-06-14 13:34:29
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Blobby :
Anywhere in UK I get my blood tested for these abnormalities? Standard labs aren't checking all this, only very basic stuff.
2026-06-13 19:18:17
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ibmalibu :
Can you share the name of the study? I’d like to share with my care team of doctors
2026-06-14 01:48:22
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Katie M :
Thanks for being a chiropractor who respects the science!
2026-06-21 23:28:23
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Madi Blake :
So is it possible to identify that with a blood test? There are so many different tests for EDS and yet most doctors in my area don’t know what to do at all. All I’ve had done is the stretch test and they didn’t know where to go from there 😭
2026-06-15 11:47:09
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BeesAtNight | 📚 ✍️ :
but what do we do about it
2026-06-15 06:17:46
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Enigma :
Yeah I didn’t have issues till I had the ant d injection, then it made me so ill and diagnosed with elhers danlos syndrome, never had issues with illness or anything before .
2026-06-13 14:40:18
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⭐️🌿🍄heather🍄✨⭐️ :
What proteins were they?
2026-06-13 19:21:06
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redhamster100 :
That's so interesting 🤔 I always wondered if they would find a reason for the MCAS connection and the post viral damage that alot of us have. It has to be something more than just being stretchy. Does it also explain the Dysautenomia too?
2026-06-13 19:18:31
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Pinko_🇮🇹_🇵🇸 :
give us the link to the original paper pls
2026-06-14 22:03:43
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Liz Helena Rodarte-K :
how do I help my brother? I have hEDS, my brother has psoriatic arthritis, my arteries dissect but his whole body attacks 😢
2026-08-06 09:17:58
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John 275 :
i have question what happens to your blood when you EDS and gets a blood transfusion ?
2026-08-11 09:53:19
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cherylarrowsmith :
Could there be a link to growing pains and hyper-mobility?
2026-07-24 14:29:11
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dahlia_cruzzz :
Can u share the studies please
2026-08-05 02:06:15
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Toni :
what if i just have regular hypermobility?
2026-07-07 18:16:26
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