Erin Rackham, PhD
Region: US
Sunday 30 August 2026 22:15:31 GMT
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claire :
This was me! It honestly lasted like a week or so for me and it evened out 🩷 randomly it also made me ravenous but it also went away!
2026-08-31 17:09:06
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legerebooks :
Yay! I hope you continue to improve on it!
2026-08-31 23:21:37
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Syd 💜 :
So glad it’s helping you! I miss Ketotifen because it was the most helpful for my MCAS related food issues, but I unfortunately had to stop because of some very weird side effects 😭
2026-08-31 05:32:16
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𝑝𝑖𝑛𝑘 :
unfortunately it didn’t do anything at all for me lmao didn’t even have any side effects!
2026-08-31 08:05:36
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no :
Same experience with guanine I'm extremely sensitive to it and so I'm on a quarter of the dose and I slowly had to taper up to another 1/8 so I'm still only on .38 mg and I to have the slowly taper up because it fatigues me so much as well as I deal with PPPD and whenever my blood pressure changesmy vestibular system has a really difficult time adjusting so I too am on the slow taper train with you
2026-08-30 23:27:25
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octician :
I guess I’m just tuned just right for ketotifen because it never made me tired and I started at full dosage right off the bat. I’ll take it 3x a day sometimes and it never made me tired.
2026-08-31 01:00:51
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STEPH :
My dr started me at 2mg… I thought I caught something at the er and I’m hearing I could have just started too high and have to ride it out???🙃
2026-08-30 23:41:37
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Christina C :
It makes me feel so exhausted and almost hungover. I appreciate hearing how it’s going for you as you power through!
2026-08-31 04:45:11
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pewpqueen 🔻 :
I’m curious have you tried LDN? These are similar to what happens to me when I increase my dose. I’ve reached my personal dose limit and want to add ketotifen!
2026-08-31 04:15:26
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L :
You helped me not feel scared to try it! After months I finally took it. A week in and it’s actually helped. I’m only on 0.15mg, but so far so good.
2026-08-30 23:27:47
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Lobster Ravioli 🦞 :
What is that ? Never heard
2026-08-30 22:33:23
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A :
My doctor started me on 0.5mg and the grogginess is significant, will need to take it very very early the night before. I like the drowsiness to help with sleep, and it feels restful instead of the tired and wired fatigue.
2026-08-31 02:15:15
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Kylie Dawley :
I’m starting Chromolyn Sodium tomorrow! I hope your experience smooths out and it goes well ❤️
2026-08-30 22:30:12
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mammabear_1973 :
oh how lovely!
2026-08-30 22:55:39
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Bethanie :
I titrated from a fingertip dip in an opened capsule. I’m up to a third. Tried just under a half a capsule and felt awful. So back to a third.
2026-08-30 22:36:20
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pasttenseofdraw.mp3 :
You might want to consider taking it once a day at night, or if you continue the split, taking more at night! I used to take 2mg in the morning and 4mg at night, and I think that’s relatively common. Now I’m doing 2mg and 2mg (mostly bc of dry mouth), I’m planning on trying all of it at night or 1mg and 3mg eventually
2026-09-01 00:29:50
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Lily Johnston MD MPH :
🥰🥰🥰
2026-09-01 11:45:23
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