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@lisa.frankensteinnn: ⛓️‍💥 You can spend a lifetime watching from the shadows and still miss everything that matters

lisa.frankensteinnn
lisa.frankensteinnn
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Tuesday 27 October 2026 17:49:09 GMT
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ME/CFS gets about $13 million a year in federal research funding. For the whole country. Multiple sclerosis, which disables fewer people, gets over $108 million. One peer-reviewed analysis ranked ME/CFS as the most underfunded disease relative to its burden in NIH’s own numbers, at roughly 7% of what that burden would call for. And it’s not just me saying it. A federal report back in 2015 called the funding “remarkably little… given the number of people affected.” To be fair, how you weigh burden against funding depends on which estimates you use, and that per-patient number (about $5 a patient vs $255 for MS) is from 2014. But the underfunding itself really isn’t debated. Whether you call it a moral failure or just neglect, that part is my opinion, not a citation. Not a doctor, and this isn’t medical advice. Sources: NIH RCDC categorical spending, FY2024 Mirin, Dimmock & Jason. Work, 2020. PMID 32568148 Dimmock, Mirin & Jason. J Med Therap, 2016. DOI 10.15761/JMT.1000102 Institute of Medicine, Beyond ME/CFS, 2015. PMID 25668027 NCHS Data Brief 488, 2023 #mecfs #chronicfatigue #myalgicencephalomyelitis #longcovid
ME/CFS gets about $13 million a year in federal research funding. For the whole country. Multiple sclerosis, which disables fewer people, gets over $108 million. One peer-reviewed analysis ranked ME/CFS as the most underfunded disease relative to its burden in NIH’s own numbers, at roughly 7% of what that burden would call for. And it’s not just me saying it. A federal report back in 2015 called the funding “remarkably little… given the number of people affected.” To be fair, how you weigh burden against funding depends on which estimates you use, and that per-patient number (about $5 a patient vs $255 for MS) is from 2014. But the underfunding itself really isn’t debated. Whether you call it a moral failure or just neglect, that part is my opinion, not a citation. Not a doctor, and this isn’t medical advice. Sources: NIH RCDC categorical spending, FY2024 Mirin, Dimmock & Jason. Work, 2020. PMID 32568148 Dimmock, Mirin & Jason. J Med Therap, 2016. DOI 10.15761/JMT.1000102 Institute of Medicine, Beyond ME/CFS, 2015. PMID 25668027 NCHS Data Brief 488, 2023 #mecfs #chronicfatigue #myalgicencephalomyelitis #longcovid
#4u #quotes #huntshowdown #greatorsearchinsghts #motivation
#4u #quotes #huntshowdown #greatorsearchinsghts #motivation
aman kemana saat hujan. #payunglipat
aman kemana saat hujan. #payunglipat
Juanakam🤍#foryou #foryoupage #بێلینگهام_باشترینە #judebellingham #بێلینگهام #ئەکتیڤبن🥀🖤ـہہـ٨ــہ
Juanakam🤍#foryou #foryoupage #بێلینگهام_باشترینە #judebellingham #بێلینگهام #ئەکتیڤبن🥀🖤ـہہـ٨ــہ
CUPOM: TAYSERRI  Energia solar não é só para quem tem placa em casa. Pague menos na sua conta de luz, na sua empresa @nuv.energia @nuvenergia #nuvenergia #nuvclipfy #nuvenergia #clipfyleague
CUPOM: TAYSERRI  Energia solar não é só para quem tem placa em casa. Pague menos na sua conta de luz, na sua empresa @nuv.energia @nuvenergia #nuvenergia #nuvclipfy #nuvenergia #clipfyleague
i could be on my way to anywhere
i could be on my way to anywhere

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